Von Hippel-Lindau Disease

Extension Study for Participants in Studies That Include Belzutifan (MK-6482-043/LITESPARK-043)

Belzutifan/MK-6482 for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), Von Hippel-Lindau (VHL) Disease-Associated Tumors, Advanced Gastrointestinal Stromal Tumor (wt GIST), or Solid Tumors With HIF-2α Related Genetic Alterations (MK-6482-015)

Familial Investigations of Childhood Cancer Predisposition

Natural History and Management of Von Hippel-Lindau (VHL) Associated Pancreatic Neuroendocrine Tumors

Retrospective Case Series of Trans-scleral Cryotherapy for Retinal Hemangioblastoma

Institutional Registry of Rare Diseases

Precision Medicine for Neurocutaneous Syndromes in Western China

Promoting Stress Management and Resilience Among Individuals With Von Hippel- Lindau Disease

MK-3795 (PT2385) for the Treatment of Von Hippel-Lindau Disease-Associated Clear Cell Renal Cell Carcinoma (MK-3795-003)

Genetic Bases of Neuroendocrine Neoplasms in Mexican Patients

Visualizing Vascular Endothelial Growth Factor (VEGF) Producing Lesions in Von Hippel-Lindau Disease

MyVHL: Patient Natural History Study

Mechanisms of Somatic Mutation and Tumor Initiation in Pre-malignant Kidney Tubule Cells

Propranolol and Von Hippel-Lindau Disease

68Ga-NY104 PET/CT in Von Hippel-Lindau Disease

A Study of BPI-452080 in Subjects With Solid Tumors

Drivers of Hypoxia-induced Angiogenesis in Tumor Development

Natural History and Management of Pancreatic Lesions in Von Hippel-Lindau Disease

Effect of Vorinostat on Nervous System Hemangioblastomas in Von Hippel-Lindau Disease (Missense Mutation Only)

Screening for Endolymphatic Sac Tumours (ELSTs) in Von Hippel-Lindau (vHL) Patients