Key Insights

Highlights

Success Rate

64% trial completion

Clinical Risk Assessment

Based on trial outcomes

Moderate Risk

Score: 52/100

Termination Rate

25.0%

4 terminated out of 16 trials

Success Rate

63.6%

-22.9% vs benchmark

Late-Stage Pipeline

19%

3 trials in Phase 3/4

Results Transparency

71%

5 of 7 completed with results

Key Signals

5 with results64% success

Data Visualizations

Phase Distribution

9Total
P 1 (4)
P 2 (2)
P 3 (2)
P 4 (1)

Trial Status

Completed7
Terminated4
Recruiting3
Active Not Recruiting1
Unknown1

Trial Success Rate

63.6%

Benchmark: 86.5%

Based on 7 completed trials

Clinical Trials (16)

Showing 16 of 16 trials
NCT00668187Recruiting

A Natural History Study of the Gangliosidoses

NCT03333200Recruiting

Longitudinal Study of Neurodegenerative Disorders

NCT04221451Phase 3Terminated

A Multinational, Randomized, Double-blind, Placebo-controlled Study to Assess the Efficacy, Pharmacodynamics, Pharmacokinetics, and Safety of Venglustat in Late-onset GM2

NCT06614569Active Not Recruiting

Long-Term Follow-Up of Subjects Treated With AXO-AAV-GM2 for Tay-Sachs or Sandhoff Disease

NCT05109793Completed

GM1 and GM2 Gangliosidosis PROspective Neurological Disease TrajectOry Study (PRONTO)

NCT02254863Phase 1Recruiting

UCB Transplant of Inherited Metabolic Diseases With Administration of Intrathecal UCB Derived Oligodendrocyte-Like Cells

NCT04669535Phase 1Terminated

A Dose-escalation and Safety & Efficacy Study of AXO-AAV-GM2 in Tay-Sachs or Sandhoff Disease

NCT03759665Phase 2Completed

N-Acetyl-L-Leucine for GM2 Gangliosidosis (Tay-Sachs and Sandhoff Disease)

NCT01372228Phase 1Terminated

Phase I/II Pilot Study of Mixed Chimerism to Treat Inherited Metabolic Disorders

NCT04470713Completed

Natural History Study for Pediatric Patients With Early Onset of Either GM1 Gangliosidosis, GM2 Gangliosidoses, or Gaucher Disease Type 2

NCT02030015Phase 4Terminated

Synergistic Enteral Regimen for Treatment of the Gangliosidoses

NCT04624789Unknown

Registry Gangliosidoses

NCT00176904Phase 2Completed

Stem Cell Transplant for Inborn Errors of Metabolism

NCT01869270Completed

Gene Therapy for Tay-Sachs Disease

NCT01102686Phase 1Completed

Pyrimethamine as a Treatment for Late-Onset GM2-gangliosidosis (Tay-Sachs and Sandhoff Disease)

NCT00672022Phase 3Completed

Pharmacokinetics, Safety and Tolerability of Zavesca (Miglustat) in Patients With Infantile Onset Gangliosidosis: Single and Steady State Oral Doses

Showing all 16 trials

Research Network

Activity Timeline