Key Insights

Highlights

Success Rate

85% trial completion

Published Results

23 trials with published results (29%)

Research Maturity

53 completed trials (68% of total)

Clinical Risk Assessment

Based on trial outcomes

Moderate Risk

Score: 49/100

Termination Rate

11.5%

9 terminated out of 78 trials

Success Rate

85.5%

-1.0% vs benchmark

Late-Stage Pipeline

23%

18 trials in Phase 3/4

Results Transparency

43%

23 of 53 completed with results

Key Signals

23 with results85% success

Data Visualizations

Phase Distribution

58Total
Not Applicable (19)
Early P 1 (1)
P 1 (11)
P 2 (9)
P 3 (11)
P 4 (7)

Trial Status

Completed53
Terminated9
Recruiting7
Active Not Recruiting3
Not Yet Recruiting2
Unknown2

Trial Success Rate

85.5%

Benchmark: 86.5%

Based on 53 completed trials

Clinical Trials (78)

Showing 20 of 20 trials
NCT06302348Phase 3RecruitingPrimary

A Study of Sepiapterin in Participants With Phenylketonuria (PKU)

NCT05781399Phase 1CompletedPrimary

First-in-Human, Multiple Part Clinical Study of JNT-517 in Healthy Participants and in Participants With Phenylketonuria

NCT06971731Phase 3RecruitingPrimary

A Study of JNT-517 in Participants With Phenylketonuria (PKU)

NCT07241234Phase 1RecruitingPrimary

A Study to Evaluate Safety, Tolerability, Pharmacokinetics, and Pharmacodynamics of AG-181 in Subjects With Phenylketonuria

NCT05166161Phase 3Active Not RecruitingPrimary

A Long-Term Safety Study of PTC923 in Participants With Phenylketonuria

NCT07526909Not ApplicableRecruitingPrimary

Effect of Different Meal Types Given Before Exercise on Plasma Amino Acid Levels and Metabolic Control Parameters in Classical Phenylketonuria Patients Undergoing Aerobic and Resistance Exercises

NCT07477691Phase 4Not Yet RecruitingPrimary

Immune Modulation During Palynziq® Treatment in Adults (IMPALA)

NCT05948020Early Phase 1CompletedPrimary

Efficacy and Safety of Orally Administered Engineered Probiotics (CBT102-A) for the Treatment of Children With Phenylketonuria

NCT04879277Not ApplicableCompletedPrimary

Study of Low-grade Systemic Inflammation in Adult Patients With Phenylketonuria

NCT06941532Not ApplicableRecruitingPrimary

GMP Powdered Substitutes in PKU and TYR

NCT05972629Phase 1Active Not RecruitingPrimary

A Phase 1/Phase 2 Open-label Study to Evaluate the Safety, Tolerability, and Efficacy of a Single Intravenous Administration of SAR444836 in Adult Participants With Phenylketonuria

NCT06901323Phase 4Active Not RecruitingPrimary

Effect of L-carnitine Supplementation on Phenylalanine and Brain-derived Neurotrophic Factor Levels in Infants and Children With Phenylketonuria

NCT01659749Not ApplicableRecruiting

Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria

NCT06780332Phase 4RecruitingPrimary

Rapid Drug Desensitization Study in Adults Experiencing Hypersensitivity Reactions to Palynziq

NCT06147856Phase 1WithdrawnPrimary

A Dose-finding Study to Evaluate mRNA-3210 in Participants With Phenylketonuria

NCT03939052Not ApplicableCompletedPrimary

Protein Requirements in Adults With Phenylketonuria (PKU)

NCT05764239Phase 3TerminatedPrimary

Efficacy and Safety of SYNB1934 in Patients With PKU (SYNPHENY-3)

NCT06289348Not Yet RecruitingPrimary

Announcement of Rare Metabolic Diseases in Systematic Newborn Screening: the Phenylketonuria Experience.

NCT03168399Not ApplicableCompletedPrimary

Evaluation of PKU Explore

NCT03058848Not ApplicableCompletedPrimary

Evaluation of PKU Start

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