NCT00157157

Brief Summary

The purpose of this study is to evaluate whether Antihemophilic factor, recombinant, manufactured protein-free (rAHF-PFM) is effective and safe in the treatment of hemophilia A patients who have not been treated with factor VIII (FVIII) before.

Trial Health

98
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
66

participants targeted

Target at below P25 for phase_3

Timeline
Completed

Started Apr 2004

Longer than P75 for phase_3

Geographic Reach
10 countries

35 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

April 1, 2004

Completed
1.4 years until next milestone

First Submitted

Initial submission to the registry

September 9, 2005

Completed
3 days until next milestone

First Posted

Study publicly available on registry

September 12, 2005

Completed
4 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 11, 2009

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 11, 2009

Completed
1.8 years until next milestone

Results Posted

Study results publicly available

July 15, 2011

Completed
Last Updated

May 24, 2021

Status Verified

April 1, 2021

Enrollment Period

5.4 years

First QC Date

September 9, 2005

Results QC Date

February 15, 2011

Last Update Submit

April 28, 2021

Conditions

Keywords

Factor VIII Deficiency

Outcome Measures

Primary Outcomes (1)

  • Factor VIII Inhibitor Development

    Percentage of treated participants who developed factor VIII inhibitors

    Assessed during study period which was to be at least 75 exposure days or 3 years (whichever came first)

Secondary Outcomes (10)

  • Bleeding Episodes Treated With 1 to ≥4 Infusions

    Reported during study period which was to be at least 75 exposure days or 3 years (whichever came first)

  • Assessment of Hemostasis for Treatment of Bleeding Episodes

    Reported during study period which was to be at least 75 exposure days or 3 years (whichever came first)

  • Annualized Rate of Bleeding Episodes

    Reported during study period which was to be at least 75 exposure days or 3 years (whichever came first)

  • Weekly rAHF-PFM Utilization

    Reported during study period which was to be at least 75 exposure days or 3 years (whichever came first)

  • In Vivo Incremental Recovery

    30 minutes pre-infusion to 30 minutes post-infusion

  • +5 more secondary outcomes

Study Arms (1)

Single Arm - All Participants

EXPERIMENTAL

All subjects enrolled in the study who meet the eligibility criteria.

Biological: Recombinant Antihemophilic Factor Manufactured and Formulated without Added Human or Animal Proteins (rAHF-PFM)

Interventions

Treatment regimens were determined by the investigator, and may have been any combination of standard prophylaxis (25 to 50 IU/kg body weight, 3 to 4 times per week), investigator-determined prophylaxis, and/or on-demand treatment (dose selected by investigator). The treatment of bleeding episodes and perioperative management was at the discretion of the investigator and consistent with the institution's standard of care. For incremental recovery assessments, a single infusion at 50 +/- 5 IU/kg was to be given. Immune tolerance induction (ITI) therapy for subjects who developed factor VIII inhibitors was at the discretion of the investigator, based on the institution's guidelines or described in peer-reviewed literature, and was to be approved by the sponsor's medical director. rAHF-PFM was to be administered intravenously via bolus infusion, except for perioperative management when it may have been given either by continuous or bolus infusion.

Single Arm - All Participants

Eligibility Criteria

AgeUp to 6 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)

You may qualify if:

  • The subject has severe or moderately severe hemophilia A as defined by a baseline factor VIII level \<= 2% of normal, as documented at screening
  • The subject is \< 6 years of age
  • The subject's legally authorized representative has provided written informed consent

You may not qualify if:

  • The subject has a history of exposure to factor VIII other than rAHF PFM or more than 3 infusions of commercially available rAHF PFM (i.e., ADVATE) within 28 days prior to screening, as determined by the subject's medical history. Any infusion of factor VIII replacement products prior to the 28-day period excludes the subject from participation
  • The subject has received more than 3 infusions of rAHF PFM (commercially available and/or study product) between screening and prior to the initial recovery infusion
  • The subject has a detectable inhibitor to factor VIII, as measured in the screening sample by the Nijmegen assay in the central laboratory
  • The subject has a history of inhibitor to factor VIII at any time prior to screening
  • The subject has a known hypersensitivity to rAHF PFM
  • The subject has any 1 of the following laboratory abnormalities at the time of screening:
  • Platelet count \< 100,000/mm\^3
  • Hemoglobin concentration \< 10 g/dL (100 g/L)
  • Serum creatinine \> 1.5 times the upper limit of normal (ULN) for age
  • Total bilirubin \> 2 times the ULN for age
  • The subject has an inherited or acquired hemostatic defect other than hemophilia A (e.g., qualitative platelet defect or von Willebrand's disease)
  • The subject is known to be seropositive for human immunodeficiency virus (HIV), hepatitis C virus (HCV), or hepatitis B virus (HBV), as determined by the subject's medical history
  • At the time of enrollment, the subject has a clinically significant chronic disease other than hemophilia A
  • The subject is currently participating in another investigational drug study, or has participated in any clinical study involving an investigational drug within 120 days of the screening visit
  • The subject (or the subject's legally authorized representative) is identified by the investigator as being unable or unwilling to cooperate with study procedures
  • +1 more criteria

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (35)

Unknown Facility

Phoenix, Arizona, United States

Location

Unknown Facility

Little Rock, Arkansas, United States

Location

Unknown Facility

Los Angeles, California, United States

Location

Unknown Facility

Washington D.C., District of Columbia, United States

Location

Unknown Facility

Atlanta, Georgia, United States

Location

Unknown Facility

Chicago, Illinois, United States

Location

Unknown Facility

Peoria, Illinois, United States

Location

Unknown Facility

Indianapolis, Indiana, United States

Location

Unknown Facility

Iowa City, Iowa, United States

Location

Unknown Facility

New Orleans, Louisiana, United States

Location

Unknown Facility

Ann Arbor, Michigan, United States

Location

Unknown Facility

Detroit, Michigan, United States

Location

Unknown Facility

Minneapolis, Minnesota, United States

Location

Unknown Facility

New Hyde Park, New York, United States

Location

Unknown Facility

New York, New York, United States

Location

Unknown Facility

Philadelphia, Pennsylvania, United States

Location

Unknown Facility

Houston, Texas, United States

Location

Unknown Facility

Vienna, Austria

Location

Unknown Facility

Toronto, Ontario, Canada

Location

Unknown Facility

Caen, France

Location

Unknown Facility

Le Kremlin-Bicêtre, France

Location

Unknown Facility

Lyon, France

Location

Unknown Facility

Marseille, France

Location

Unknown Facility

Nantes, France

Location

Unknown Facility

Paris, France

Location

Unknown Facility

Bremen, Germany

Location

Unknown Facility

Frankfurt, Germany

Location

Unknown Facility

Hanover, Germany

Location

Unknown Facility

Münster, Germany

Location

Unknown Facility

Milan, Italy

Location

Unknown Facility

San Juan, Puerto Rico

Location

Unknown Facility

Barcelona, Spain

Location

Unknown Facility

Stockholm, Sweden

Location

Unknown Facility

Cardiff, Wales, United Kingdom

Location

Unknown Facility

London, United Kingdom

Location

Related Publications (4)

  • Ewenstein B., Patrone L, Schroth P, Spotts G, Fritsch S, Pavlova B, Ehrlich H. Efficacy of antihemophilic factor (recombinant), plasma/albumin-free method (rAHF-PFM) in bleed prevention. J Thromb Haemost. 2007; 5(Suppl 2): P-S-179.

    RESULT
  • Ewenstein B., Patrone L, Schroth P, Spotts G, Fritsch S, Pavlova B, Ehrlich H. Efficacy of antihemophilic factor (recombinant), plasma/albumin-free method (rAHF-PFM) in bleed treatment. J Thromb Haemost. 2007; 5(Suppl 2)v: P-S-180.

    RESULT
  • Shapiro A, Gruppo R, Pabinger I, Collins PW, Hay CR, Schroth P, Casey K, Patrone L, Ehrlich H, Ewenstein BM. Integrated analysis of safety and efficacy of a plasma- and albumin-free recombinant factor VIII (rAHF-PFM) from six clinical studies in patients with hemophilia A. Expert Opin Biol Ther. 2009 Mar;9(3):273-83. doi: 10.1517/14712590902729392.

  • Auerswald G, Thompson AA, Recht M, Brown D, Liesner R, Guzman-Becerra N, Dyck-Jones J, Ewenstein B, Abbuehl B. Experience of Advate rAHF-PFM in previously untreated patients and minimally treated patients with haemophilia A. Thromb Haemost. 2012 Jun;107(6):1072-82. doi: 10.1160/TH11-09-0642. Epub 2012 Apr 4.

MeSH Terms

Conditions

Hemophilia A

Condition Hierarchy (Ancestors)

Blood Coagulation Disorders, InheritedBlood Coagulation DisordersHematologic DiseasesHemic and Lymphatic DiseasesCoagulation Protein DisordersHemorrhagic DisordersGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Results Point of Contact

Title
Study Director
Organization
Shire

Study Officials

  • Study Director

    Takeda

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
OTHER
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 3
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 9, 2005

First Posted

September 12, 2005

Study Start

April 1, 2004

Primary Completion

September 11, 2009

Study Completion

September 11, 2009

Last Updated

May 24, 2021

Results First Posted

July 15, 2011

Record last verified: 2021-04

Data Sharing

IPD Sharing
Will share

Takeda provides access to the de-identified individual participant data (IPD) for eligible studies to aid qualified researchers in addressing legitimate scientific objectives (Takeda's data sharing commitment is available on https://clinicaltrials.takeda.com/takedas-commitment?commitment=5). These IPDs will be provided in a secure research environment following approval of a data sharing request, and under the terms of a data sharing agreement.

Shared Documents
STUDY PROTOCOL, SAP, ICF, CSR
Access Criteria
IPD from eligible studies will be shared with qualified researchers according to the criteria and process described on https://vivli.org/ourmember/takeda/. For approved requests, the researchers will be provided access to anonymized data (to respect patient privacy in line with applicable laws and regulations) and with information necessary to address the research objectives under the terms of a data sharing agreement.
More information

Locations